E tautoko ana a GFANZ i te UNDRIP (GFANZ Supports the UNDRIP)

E tautoko ana a GFANZ i te UNDRIP (GFANZ Supports the UNDRIP)

11th November 2024 – FOR IMMEDIATE RELEASE Genomics for Aotearoa New Zealand (GFANZ) is a charitable organisation whose purpose is to promote the use of genomic science for the benefit of all society. GFANZ affirms its support for the United Nations Declaration on the Rights of Indigenous Peoples (UNDRIP) and upholding Te Tiriti O Waitangi…

Working Paper: Engineering data equity: the LISTEN principles
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Working Paper: Engineering data equity: the LISTEN principles

Data sharing is common practice amongst genomics researchers. So is not sharing. Open Science principles can be (and are) applied in ways that diminish or ignore benefit sharing. Māori communities may want to have control over access, use, and downstream benefits to their genetic data (human and taonga species). Is it technically possible to honor…

Research Paper: De-novo assembly of four rail (Aves: Rallidae) genomes: A resource for comparative genomics

Research Paper: De-novo assembly of four rail (Aves: Rallidae) genomes: A resource for comparative genomics

Last month, Julien Gaspar, Steve A. Trewick, and Gillian C. Gibb published the paper De-novo assembly of four rail (Aves: Rallidae) genomes: A resource for comparative genomics. It is open access for everyone to read. The publishing of this work is a milestone for the GFANZ cloud bioinformatics platform project. By using the GFANZ infrastructure,…

News Article: DNA analysis confirms species: Whale found at Te Kaha unusually ‘rare’
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News Article: DNA analysis confirms species: Whale found at Te Kaha unusually ‘rare’

“We had a kōrero about the rarity of Wharekura and about how us taking her to be studied benefits not only marine science and everybody in Aotearoa, but us as a people, too, so we can understand more about what’s happening here in our own water. Having a taonga like Wharekura washed up so young…

Indigenous nonhuman genomic data – Expert voices in the journal Science
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Indigenous nonhuman genomic data – Expert voices in the journal Science

Tahu Kukutai and Amanda Black argue that researchers must do much better in honoring the kaitiaki rights of Māori regarding the protection of indigenous nonhuman genomic data. Their work CARE-ing for Indigenous nonhuman genomic data — rethinking our approach was publish in the journal Science recently. This piece is well researched, clearly written, and a…

News Article: Data Sovereignty: Practical Reality Or Pipe Dream?

News Article: Data Sovereignty: Practical Reality Or Pipe Dream?

When a person has sovereignty over their own data, they have the ability to control the use of that data. This ability (or lack thereof) has a strong connection with privacy. In terms of genetic or genomic data, much more than most would expect can be learned about the individual whose data it is. A…