News Article: Data Sovereignty: Practical Reality Or Pipe Dream?
When a person has sovereignty over their own data, they have the ability to control the use of that data. This ability (or lack thereof) has a strong connection with privacy. In terms of genetic or genomic data, much more than most would expect can be learned about the individual whose data it is. A lot can also be learned about that person’s relatives.
The article below describes some concerns about the current law in Aotearoa New Zealand around data sovereignty. It is an interview with Dr. Gehan Gunasekara (University of Auckland) who has a journal article on this topic.
Data Sovereignty: Practical Reality Or Pipe Dream? – Mirage News