Save Science Coalition Panel Discussion Video & Report

When a person has sovereignty over their own data, they have the ability to control the use of that data. This ability (or lack thereof) has a strong connection with privacy. In terms of genetic or genomic data, much more than most would expect can be learned about the individual whose data it is. A…

However, the new agreement is unlikely to lead to major changes to New Zealand law, or improve the rights of Māori to own or control their intellectual property and taonga (treasured possessions). Given the well-documented misappropriation of Māori knowledge and taonga, more substantive protections are still needed. Full Article